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Lymphoma Living with Lymphoma

Walking on Eggshells


Author:

Brian Stabler, PhD

University of North Carolina School of Medicine

Medically Reviewed On: January 28, 2002

People say that you get what you wish for. Maybe they're right. Ten years ago I wished with all my heart that I would be here now, at this moment. And I am, alive and well. It could easily have been otherwise.

In 1990, after having felt tired and listless for months, I finally went to see my doctor. His verdict was not good. I had non-Hodgkin's lymphoma, a form of cancer that attacks the body's immune system. Now, as cancers go, this one has at least some good news to go with it. This type of cancer can lie dormant for long periods of time, causing little or no problem for its unwilling host, as I like to think of myself. On the other hand, it is also notoriously hard to treat, returning again and again until finally it overwhelms the body's immune defenses. Since that time, I have had to work to build a life that includes this condition, this unwelcome guest.

Below are some of my recent thoughts about living with cancer. They are "ditties", or small fragments of writing, like the bricks in a sidewalk. Maybe they will eventually turn into a path. Who knows? Perhaps this journey is the path.

The True Value Of Traveling Companions

For days after I heard my diagnosis I kept thinking, "This can't be real," and "Cancer happens to somebody else, not me," and "Where do I go from here?" I was shaken so badly that I could not concentrate or sleep, and I was moody and irritable. My doctor, John Parker, advised me to take a few days off work to consider my options, but I could not see any choices. I could not even plan what to do the next day. This is the time when new cancer patients are most vulnerable to losing sight of their life paths, precisely because there are no fixed and reasonable plans available. "Start as you mean to continue" my father used to say. He was an ex-navy man and believed in always setting a course before leaving port. So, there I was, a stranded traveler sitting in the harbor, with no map and no compass. Some sailor!

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